Debra was organized more than 25 years ago to help patients and their families. Its activities include:
- Promoting and supporting extensive scientific research to achieve a cure for EB.
- Assisting, supporting and guiding families in the physical and emotional treatment of individuals with EB. Debra's programs include the daily services of an experienced Nurse/Educator, a national physician referral service, a network of regional support groups and an information filled website.
- Representing families and patients to the public and government institutions.
