Welcome to the Wings for Layla website. You will see we have a different header for 2010 - "Dunking for EB". In lieu of the traditional Wings for Layla: Walking for EB event that was held in 2009, we are taking part in a great event called "Dunk for a Cause" through the KOHLER Company - KOHLER Stewardship. See the Details tab to learn more about Dunking for EB and how you can help! | Site Updated on: 6/27/10 
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What is Epidermolysis Bullosa (EB)?
Epidermolysis bullosa (EB) is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma. This rare genetic disorder affects all ethnic and racial groups. Children with EB are often referred to as Butterfly Children because their skin is as fragile as a butterfly's wings.
There is no cure for EB. For more information on this disease please see www.debra.org.
Why are we raising money for EB?
Our daughter, Layla, was born on January 20, 2009 and was diagnosed with EB. We were not aware that she would have this disease and prior to her birth, we had never heard of EB. Our lives have forever been changed, but we wouldn't trade it for anything because of this beautiful butterfly God has blessed us with.
